Diagnosis limbo (Clinically Isolated Syndrome, but I am nearly certain it is MS).

I am what they are calling CIS but "probable MS" at this stage too. I'm 24 female. Had one episode last year where I lost coordination of my right arm, like I could move it and use my fingers but it just wouldn't go where I wanted it to go. My balance was off too, kept running into doorframes.

I ended up convincing myself that I'd had a stroke, so went to emergency and got admitted. CT scan showed nothing, so they sent me to a bigger hospital for an MRI. They found one lesion on my brain stem, right in the spot that would cause the symptoms I was experiencing.

I had a neuro come in and tell me that they were diagnosing me with CIS which is basically just the first documented MS attack. He said "don't worry we have very good drugs available these days" and sent me home. Cool. I probably have MS oh well whatever. Then I realised what a big fucking deal all of this was and freaked out big time for about a month. World is ending etc.

Went in for another MRI, this time of my spine and there was nothing showing there, but the neuro says he's pretty sure it is MS, just a mild version. Whatever that's supposed to mean. So I just got back to my life. Married my amazing husband and now we are expecting a baby in about 3 months time. Life is still good. And if something shitty happens along the line we will deal with it then, just like we have dealt with it up until this point.

As morbid as it sounds, its altered my perspective to pretty much "eh, if you live long enough eventually something is going to fuck you up, bad things happen to everyone so let's just get on with it and stop taking the good moments for granted". I enjoy and feel the special moments of my life a lot more now, and I realise what's important to me.

Sorry I have gone on and on a bit here but thought hearing from someone who is in your boat might help :) best of luck!

/r/MultipleSclerosis Thread