Discussion Thread

http://www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

Why is there no treatment available at GOSH?

There is no cure for Charlie’s condition which is terminal. GOSH explored various treatment options, including nucleoside therapy, the experimental treatment that one hospital in the US has agreed to offer now that the parents have the funds to cover the cost of such treatment. GOSH concluded that the experimental treatment, which is not designed to be curative, would not improve Charlie’s quality of life. 

 

How did GOSH come to this decision about his treatment?

GOSH’s clinicians had to balance whether this experimental treatment was in his best interests or not.

One of the factors that influenced this decision was that Charlie’s brain was shown to be extensively damaged at a cellular level. The clinician in the US who is offering the treatment agrees that the experimental treatment will not reverse the brain damage that has already occurred.

 

The entire highly experienced UK team, all those who provided second opinions and the consultant instructed by the parents all agreed that further treatment would be futile – meaning it would be pointless or of no effective benefit.1  

/r/neoliberal Thread Parent