I doubt Aubs doesn't jump at the chance of more testing...

Honestly shocked at the existence of this community. Nobody here has any business diagnosing or invalidating anyone’s illness. This woman is clearly ill and has not been able to find all the answers to her illness yet. There are plenty of people who fall into this category of MCAS, EDS, dysautonomia, Lyme’s disease, POTS, and CFS/ME who have not been able to find the right treatment. Sharing their experience is something that they feel may help them cope and others who are struggling with similar diagnoses. She has received diagnoses from DOCTORS, who are trying to give her direction and answers. If you have a problem with her EDS diagnosis that she received from the MAYO CLINIC and you aren’t a doctor, how do you even have the right to challenge that? If you have a problem with MLM, oils, and supplements then complain about the companies and discuss evidence of the efficacy of these products separately from people who use them. It doesn’t mean they are not ill. I think that most people here would benefit from Jennifer Brea’s ted talk and her documentary Unrest. There have always been diseases that we didn’t yet have the science to understand, and it’s import to trust and support people. Good luck to you all.

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