Hi! I'm starting a yoga/meditation class specifically for people who have been diagnosed with ME in a few weeks. I would love some advice from your point of view.

Each of us has different abilities, so it would be hard to generalize. I can speak in detail about my own situation, and hopefully it will be of some assistance to you.

I'm about 50, male, and like many CFSer's I had chronic neck and back and hip pains from sitting basically all day, every day. While I was still reasonably able, I found a local Svaroopa instructor who taught a special, gentle class for older and disable people. I attended a couple of times, and it was way too much. However, even with just that brief exposure I could see that this had real value for me.

I arraigned a few one-on-one sessions with the instructor, with the idea that I would get a solid understanding of the 'basic four' positions that were regarded as the most important set to know. It took two or three visits over the course of a few weeks until I felt like I knew what I was doing.

My health declined a bit further and now I find myself mostly housebound. I am very, very glad that I took the time to get the knowledge that I did, because my yoga has been a primary means of minimizing discomfort. When I skip it, I know, and even though I am an extraordinarily lazy man, I don't skip it very often. It's been four or five years now I think.

I still do only these same four positions. Three of the four are assumed while sitting or laying down, and all that is required after assuming the position is to simply relax. The fourth is done while kneeling.

I will occasionally have days where I am too tired to do even that. Even when I am feeling good, I do it every other day because I get sore if I do it more any more often.

Muscle tightness is a common symptom for us, and even after my years of regular practice I am no better able to fully assume the positions now that when I was a beginner. The more advanced stuff, which most healthy people would consider intermediate, is just out of the question for me.

So, with that in mind, I'd suggest short classes, with few positions, and with very easy positions, and if possible, an option for one-on-one time instead of regular classroom work.

You have the potential to do a lot of good with this group, I hope it works out well for you.

/r/cfs Thread