I'd really appreciate some advice about potential jobs for people with CFS

I just about manage working 3 days a week.

I do Mon Wed Fri. Which gives me lots of rest. My old job was a visiting social worker. But now I'm completely office based and either do telephone assessments or offer ' professional advice'

So, it sucks I've had to take demotions, and I can't manage a permanent job. So I take locum work. Even only working 3 days a week the other days are recovery days so during a working period I don't have any social life, I can't visit my family who live a few hours drive away.

In between locum work I'll usually take a couple of months off unpaid so I can do all the things that make life worth living. I think that's more important than money.

I've had to change my expectations from life. Cut my cloth to the resources available to me. I make sure to never get in debt so I live a pretty low cost life.

Dispite working in health and social care I've come up a fair amount of discrimination. People are nervous to employ people with condition s like CFS.

I do everything possible to never have a day off sick. I know 4 days is too much so I work 3. I know I can't do anything on rest days otherwise I will struggle to finish the week. I have to be really strict with myself. I keep medical appointments out of work time. Yes legally I can take them, but I like to not give them any ammunition.

While it's hard, I also got sick in my early 20's. And that's too young to not try and work out someway to have "meaningful occupation" or a career or goals of sorts.

Also. Getting benefits here (UK) seemed harder than finding a way to make some amount of "work" work for me.

Yeah, I'm broke, and it's hard. But I'd rather be working towards something than being at the mercy of benefit cuts.

I don't mean this to sound like the people who can't work should. I fully appreciate I'm not as bad as some. But there are often ways to find someway to be in control of your own life if you can be creative about managing your condition and life.

/r/cfs Thread