My heart goes out to you and your family.
I know exactly what you are going through. My son was aged 12
when he was diagnosed with a rare brain tumor. One day he
was laughing and playing next extreme headaches.
We had so many people giving us advice and meaning well but
at the end of the day just make each day count. I was told there
was no cure for my son but I lived in hope and never gave up each and every day.
We filled our days with what he wanted to do and made each day
as happy as we could.
My best advice would be to make her days as memorable as you
can and just embrace the time you have.
I did all of that with my son and when he was tucked up in bed
at night I would take a hot shower and cry my eyes out but in
the morning and every morning say to yourself Im not giving
up.Its the hardest thing a parent can ever go through and no
body knows that until you have been through it.
But don't forget about yourself and your partner. You are both
going thru this so do it together and the support of your family.
We were told by the doctors he had maybe 6 weeks to live
but with the help of radiation my son lived for 18months. If you
and your partner can take a little time out for a coffee break my advice is to do it. That little break makes all the difference. It
gives you time to just gather your thoughts. You will be amazed
at where your inner strength will come from to help you through
this.
I just wanted you to know you are not alone and my thoughts
and prays and love go out to you.
Just one more thing. All the advice in the world that people will
give you doesn't matter. At the end of the day you are her Mother
and you know best. We had so many docs chewing in our ear but
they didn't know my son and they don't know your daughter so
you do whats best for her and your heart will tell you as well.......
My son did that radiation, had a proper mask made and he
was fantastic thru the whole 6 weeks so yes definitely that
and you will see a big difference. That's what gave us so many
more months to spend together.