My four year old daughter was recently diagnosed with DIPG, a rare, inoperable and incurable brain cancer...

My heart goes out to you and your family. I know exactly what you are going through. My son was aged 12 when he was diagnosed with a rare brain tumor. One day he was laughing and playing next extreme headaches. We had so many people giving us advice and meaning well but at the end of the day just make each day count. I was told there was no cure for my son but I lived in hope and never gave up each and every day. We filled our days with what he wanted to do and made each day as happy as we could. My best advice would be to make her days as memorable as you can and just embrace the time you have. I did all of that with my son and when he was tucked up in bed at night I would take a hot shower and cry my eyes out but in the morning and every morning say to yourself Im not giving up.Its the hardest thing a parent can ever go through and no body knows that until you have been through it. But don't forget about yourself and your partner. You are both going thru this so do it together and the support of your family. We were told by the doctors he had maybe 6 weeks to live but with the help of radiation my son lived for 18months. If you and your partner can take a little time out for a coffee break my advice is to do it. That little break makes all the difference. It gives you time to just gather your thoughts. You will be amazed at where your inner strength will come from to help you through this.
I just wanted you to know you are not alone and my thoughts and prays and love go out to you.
Just one more thing. All the advice in the world that people will give you doesn't matter. At the end of the day you are her Mother and you know best. We had so many docs chewing in our ear but they didn't know my son and they don't know your daughter so you do whats best for her and your heart will tell you as well....... My son did that radiation, had a proper mask made and he was fantastic thru the whole 6 weeks so yes definitely that and you will see a big difference. That's what gave us so many more months to spend together.

/r/cancer Thread