My Mom might have MS we're both terrified and we have questions.

In my own experience (and that’s really all anyone can give you when it comes to MS), it’s been more of a pain in the ass than anything else. There are medications that can help with the shaking and pain (baclofen, tramadol, and medical marijuana are my three buddies now), and physical therapy and exercise can help.
Meditation and yoga are pretty useful as well, especially with keeping calm and maintaining strength. My secret weapon is a really dark sense of humor. I had a coworker ask me if I’m a good dancer - I told her not so much anymore, but if I go off my muscle relaxers for a while I could probably shake to the beat. I do my best to cope with the problems, and make light of the rest of it.
If you have the option, find an MS specialist. It’s a pretty rare illness and you’ll be much better off with someone who knows it well. If you’re in the US, the National MS Society is a great resource for info and assistance. For me, stress, heat, and over exertion are the biggest factors in feeling worse, but everyone’s different. I document everything now - it just makes sense to keep an eye on progression and let the neuro know asap.

/r/MultipleSclerosis Thread Parent