Have you ever run a non-profit? Do you have any idea of the magnitude of work that has been put into just the lobbying for ICD codes just FOR US? The $ donated to trying to find a cure and research? It’s really too bad for you because as a supporter for 5* years I have learned more from this org than any doctor or medicine I have ever had to pay for. I’ll put your suggestion in the box in at the meeting or perhaps you should send them an email. The amount of free information on their website alone not to mention along the major social media platforms put most doctors to shame. Maybe you could volunteer for the organization. As someone who knows the significant impact and huge tool that they have just given to every single one of us, your words are really sad. Please do your homework. You know how long it takes to get in to see a doctor and to have some of these docs take time on a Saturday-you should know better. If we really want to find a cure be a part of the solution and not a Karen. If you knew it was going to cost $60 which was on their site forever I would hope you could have gathered a group to watch it together. This is why I quit groups like this who refuse to TRY to prioritize their own health.