My parents and I have looked into ABLE accounts but I think I don't qualify because of how they backdated my disability (it's technically for reasons other than hEDS, I do think it could be related but we don't have the resources to prove it), plus my parents don't want me to because "you can just transfer money into our account if you need to" (which is a whole other thing I don't want to get into).

As for possibly getting undiagnosed, I just want to have a correct diagnosis. I'm constantly second, third, fourth-guessing whether my problems are 'real' or if they're related to other problems (like, is it just part of my autism or do I just think that because my mom insists they're linked, or is it because I actually have chronic Lyme and haven't had a Lyme-literate doctor test for it, or is it just because I'm out of shape) and having concrete answers makes me feel better even when they don't have good solutions. And I guess I just don't trust doctors to believe me when I say I have hEDS, since my anxiety doesn't believe me either (and I just got away from a neuro that definitely didn't believe a word I said and expected me to just put up with unmedicated migraines for three months, so I have some fresh trust issues there).

I'm just tired of my hands hurting and not knowing what to do about it. In retrospect I probably shouldn't have posted at all because now I feel like an even bigger idiot.