Unidentified Chronic Fatigue/Hypersomnia

Hello. For years I have been struggling with energy problems, but currently have my doctors stumped on the direct cause and solution. In order to properly give context, I feel it is best I detail several factors. I'm a 23 year old, 5'8” Caucasian male at 165lbs. I was born 11 weeks premature at 2lbs, 14oz. During the two trimesters, my mother would off and on smoke marijuana, and admitted that she had one of her “worst acid trips” early on before she knew she was pregnant with me. I was also told that I was shaken as a baby at least once by my father until my eyes rolled into the back of my head. I have been diagnosed with ADD and seasonal allergies. I take a daily multivitamin, 20mg of Amphet/Dextro daily for ADD, and 2000 IU over-the-counter vitamin D-3 supplements daily. I do not consume alcohol, smoke, do drugs, or regularly consume caffeine. I started truly noticing a significant change in my energy levels when I got a full-time job working at a grocery store late 2016, and before then I merely would work part-time when called in as a landlord's assistant, generally for about 2.5-6 hours a visit. Even in high school, I would constantly lay my head down in class and would be often overwhelmed from homework that would require any semblance of mental effort even if I knew the material or showed interest in the subject. At work, customers and peers alike would comment that I looked drained and ready to leave, and this was before I reached the point where I was pushing carts for 4+ hours a day (up to 7.5). I would make adjustments in an attempt to assist my situation, managing my stress levels, sleeping more consistent hours, making attempts to work out at the gym, eating healthier, and consuming protein and nutrition drinks. Nonetheless, I'd experience daily lethargy off and on that would make it a struggle to muster up the effort to do anything beyond what is “necessary”, neglecting simple things like regularly washing my clothing and hair and constantly failing to meet goals or even indulge in things I enjoy such as playing video games or keeping up with friends due to the mental effort required. In all aspects of my daily life I would drag along and struggle just to keep my head facing front and center and my expression attentive. At worst I would wince in exhaustion and my liveliness would rival that of a few select mid-life individuals I knew. I spoke with my primary care doctor, and he suggested I exercise for an hour daily, even though I was already doing manual work. My sessions at the gym were strained, where even though I had the strength and capacity for certain weights and repetitions (even as shown through different visits), it was as if my body struggled to provide my muscles with the energy they needed to put in the work. I would sit around, exhausted and incapable of putting in much effort. Even running a quarter mile provided me with little stimulation. I decided to get my vitals checked at the doctors', in which the results of my blood test showed that I was healthy in most levels, including things like my thyroid, to which they merely revealed my vitamin d was slightly low (leading me to take the supplements I do, now), my blood sugar was slightly high (in which I since have decreased my daily sugar intake), and my testosterone was “normal”, and when I asked for the numbers, while I forgot what the free, “available” number was (it was something along the lines of that of the average for a man in his late 30s), my total testosterone was 302, which by some health guidelines is only 2 points above “passing”, with anything under 300 potentially warranting testosterone replacement therapy, and read that anything below 400 is essentially a hormonal struggle. I waited around 2 weeks, took more blood, and got a total value of 412, instead. With this in mind, I spoke with my endocrinologist, detailing that I believe low testosterone might be a factor with my energy problems, sharing different aspects of myself that are potential indicators of a hormonal deficiency, from thinning, receding hair, a natural inclination against things such as dominance, pride, and overconfidence, a lack of genital potency in the sense of having less-firm, shorter-lasting erections, a somewhat weak bladder, having less muscle definition and an overall appearance of more meekness and shortness than my peers while growing up even with others with similar activity levels and lifestyle choices, and other secondary sexual characteristics such as voice and body hair. My doctor's response was that while my testosterone levels are low, they're not clinically-poor enough for me to get TRT, to where even while supplementing it with HGH and me having no intention of getting a woman pregnant, it'd make my levels “too high” and that it could have adverse effects on my heart, and ultimately said to consider other factors. I turned to a sleep specialist, and explained that I often times feel worse after waking up from sleep than I did beforehand, and that my sleep isn't “restorative” enough. Their hypothetical evaluation for me was that it could potentially be that, akin to that of my ADD, my mind isn't fully “awake”, denying me the feeling of restfulness throughout my days, and admitted that outside of extreme lifestyle changes and restrictions towards ones' activities of stimulation, the only thing that could help to an extent would be stimulants, essentially suggesting I go back on ADD medication even though I had weened myself off of it years ago due to becoming used to its effects to where it felt as if it provided no inherent benefit to my attention, it'd simply make me tired around the time I'd normally take it, as if my body depended on the energy it provided. I did an extensive on-site sleep study that confirmed that I do not have sleep apnea, and none of the signs seemed to suggest narcolepsy, but did confirm that I have hypersomnia. I did wake up several times during the testing, similar to how it usually is at home, but was told that total sleep value isn't just based on sleep quality, but the quantity, as well. I was directed to sleep earlier and for longer and log it all down for 8 weeks, starting the beginning of last December, despite generally getting in 8 hours of sleep and not sleeping as late due to having a new job as safety patrol, yet was fine with sleeping late due to being so accustomed to second shift. Presenting all this to my doctor and doing a physical, he seemed at a loss for advice, saying that on his end, I seem completely normal and prescribing me with ADD pills in order to see as a side effect if they'd help my energy levels, any. I've almost hit my 8-week mark for my sleep journal, and despite less mental and physical stress, consuming less sugar, and taking stimulants, I have still been struggling daily with this mysterious condition that's been holding me back all this time. I keep up with friends, family, and chores a lot less, I haven't mustered up the effort to go to the gym for about 2 months, and I'm stuck in a cycle of working while thinking about all the things I would like to or should be doing when I get home, only to be left to merely interacting with social media, art sites, and music; all things that require little effort on my end. I know it's not just work, as even especially easily days will take a toll on my joints and energy, and at times will experience this drag for the entirety of the three days off I get in a row. Friends have asked if it's depression at work, but after hearing the many varied indicators of such, I can say with certainty that it's not an emotion-based chemical imbalance in the brain that's holding me down, and I have very few diagnosed issues. With all this in mind, is there any sort of insight that can be gathered, or am I merely going to have to make due with what I have, forcing myself to exercise more and rely on a more strict and consistent diet, trying to merely reduce what unavoidable condition I experience? The only other factor that I have yet to look at it my body's “absorption rates”, to where a problem with such could mean that my body doesn't properly process the nutrients I gain, essentially making it as if I'm malnourished. I don't know if that would be a potential element or how much treating such a potential issue would serve to remedy my situation in the long run even if it were the case.

/r/AskDocs Thread