Where do I go from here?

Have you ever thought about bringing them to a doctor's visit with you, or visiting them when you're looking and feeling very ill? I also have POTS so I have weird symptoms like my feet turning completely purple and ice cold, and it took seeing those kinds of things and coming to my doctor's visits with me for my dad to understand what I was going through. He used to push me very hard but now he's my biggest champion... he takes me to see whatever specialists I need to and is supportive of me not working or going to school for the foreseeable future. He was in denial for a year or two but now that he's seen how I look on my dozens of bad days, he realizes how sick I really am. Maybe your parents could come around too?

/r/cfs Thread Parent