3. Who loves this man?

Who loves this man?

I totally get it. I have been deteriorating for 11 years, I am 100% bedridden, I pee and defecate in bed, I haven't been able to have a shower or have my hair washed in half a decade, and I am in the process of losing my ability to speak.

I am desperate.

  1. But science just doesn't work that way.

    NIH is giving shocking $2.8 billion for Alzheimer's research per year and researchers haven't made any progress because they caught on to the wrong thing and poured years and money down the drain. OMF and Dr. Davis are casting a wide net so that doesn't happen to us, but that means each research venue is going slower

  2. OMF is publishing research papers and progressing our knowledge of ME/CFS. This one is from just few days ago Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology

    Sorry but I am waaaay too ill to do the whole search but go to their webpage and I'm sure it's all listed there somewhere. Or you could send them an email, I am sure they will be happy to summarize it for you.

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So much advice literally just doesn’t apply to us Which “miracle cure” scams did you fall for? As a twelve year CFS veteran, I understand how confusing and overwhelming this condition is and just how desperate we can be for real help. Unfortunately, that leaves many of us vulnerable to scams. I feel like tried almost all of them. What normal things make you sad since getting ME/CFS? Frustrated, I feel unable to make any changes in my life whatsoever for the better. Are you single because of CFS? If not, how did you find your partner? Why do no CFS specialists admit that you can permanently damage yourself by a crash? How do you manage/maintain your body weight? To all the CFS pet owners (guardians) out there, how manageable is caring for pets? CFS changed my life, I adapted and appreciate being normal. Causes and other known Specified Illnesses Similar to CFS? Has anyone had any success taking electrolytes? Where do I go from here? Has anyone here gotten significantly better? It's hard keeping my head up these days. Little Update I'd really appreciate some advice about potential jobs for people with CFS

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