What is one small but significant thing you do as a patient or caregiver that helps make life with keratoconus easier?

Just to mention, I had lenses since day 1 when I was like 10. I know every one is different, I met adults who (as a favor) I had to hold their head down between me legs, open their eyes and someone else would drop eye-drops into their.... well, eyes. (Like in thae episode of friends!) So of course many children will find it difficult to insert lenses, but just that you know that it’s possible and the reward is amazing.

Whenever I go a few days without lenses, than I put them in, everything is so sharp it surprises me every time like it was the first. I’m not joking, the difference is staggering, and from what you said, your daughter eyesight is significantly worse than mine.

Years and years ago my optematrist told about inserting rings, surgically, into the eyes, something like that, heard of it? Idk what came out of this approach but it was supposed to help. Also, of course, a transplant is always in play if you can’t correct the eye sight. Transplant pretty much gurentee decent eyesight with glasses. Obviously some will be reluctant to expose their young offsprings to a surgical procedure.

Idk why i wrote all this. It hurts my heart a little kid that doesn’t see well. I suppose I just wanted to share my knowledge even tho you probably know everything I mentioned and much more. Forgive my broken English. I Wish you and your daughter all the best!

/r/Keratoconus Thread Parent