Just got out of er. They think I have crohns or ulcerative colitis. I can't even get a consultation for a,scope until Tuesday and the little amount of pain meds they sent me home with are already half gone. What should I do?

That's really sad. And unfortunately, it also highlights the level of misinformation that exists about IBD, even with doctors.

Anyways, good to hear you're feeling a little bit better. The scope results will take a few days to confirm your diagnosis, but if it's IBD, they should be able to guess just by looking at your intestinal walls (though biopsies are the true confirmation). CD tends to have skip lesions, whereas UC usually starts in the rectum and extends proximally with continuous lesions (generally).

Treatment depends on which one you have, because usually the first line of treatment for UC (mesalamine derivatives) is not as effective in CD. It also depends on the severity of your inflammation and bleeding. If it's not too bad, they'll probably go with prednisone to get things 'under control' and then an immunosuppressor like 6mp/azathioprine or cyclosporine. If things look really bad, they may be tempted to jump straight to the last line of treatment, which is the biologics (Humira or Remicade are usually the first biologics to try).

Prednisone can start working within days, whereas the biologics/immunosuppressors can take a handful of weeks or even months to become truly effective, but this can vary. Also, take what I'm saying with a grain of salt - I'm a med student with UC, but I'm only a first year lol. Many IBD doctors have differing views on treatment plans, so you might be told differently. But once you know exactly what regimen they're putting you on/what the diagnosis is, a lot of people on this subreddit will be able to give you more info!

As a heads up, every treatment for IBD tends to have some side effects and risks associated with them. But doctors, and most patients, agree that the benefits of the drugs outweigh the potential risks and side effects. I think many GIs won't really say that to a patient, especially if they just got diagnosed, but I think it's important to understand so that you're prepared. It's nothing to stress about, but just something to be aware of.

/r/CrohnsDisease Thread Parent