Can you believe that 97% of people with celiac are undiagnosed?

My current doctor insists that blood tests can detect celiac disease without weeks of daily gluten exposure. She's the third or fourth doctor I've had who's claimed that, including a gastro "specialist" who later lost his medical license for unrelated malpractice. I already have a positive test from back when I was still eating gluten, but they always insist on a new test to "confirm" it.

I mentioned during my last appointment that I've recently had severe night sweats after accidental gluten exposure, and despite the fact that this is one of the more commonly-known Celiac symptoms, she ordered a goddamn HIV test. I'm currently in the process of firing her.

I think rare=impossible to most doctors, especially if it's associated with a fad disease.

Good example - I've been getting iritis (an autoimmune condition where the immune system attacks the eyes) at least 1-2x a year for 11 years straight, and despite my well-documented history of being treated for this diagnosed condition, they laugh me out of the room when I go for treatment. I've already had permanent eye scarring confirmed by an opthlalmologist, yet GP doctors gaslight me and put fabricated quotes from me on my charts. They'll try to put words in my mouth - "so your eye is irritated? It burns?" I'll respond "No, it feels like a migraine in my eye, just like a every other time I've gotten iritis." Then after they discharge me without treatment, I'll get ahold of my records and see they quoted me as saying "my eye burns."

I'm dealing with bright red swollen hand joints and iritis right now. Mysteriously, it happened after I took an OTC medication for a week that turned out to be manufactured in a facility with wheat. Gee, I WONDER what's causing those symptoms?

I'm convinced at this point that the medical field has a lot in common with cults. Evidence and reason don't matter if the all-knowing doctor disagrees. I've literally brought a printout of my previous iritis diagnosis with me to appointments and still been turned away. I think i could tell my doctor that I'm gonna start rating wheat for a week, then come back a week later with iritis and visibly swollen hands, and they'd still write it off as a coincidence.

/r/Celiac Thread