I think deep down I knew it’d be something like that.

My GP is a holistic doctor and sent me for blood work a few weeks ago so hopefully she’ll be able to address a lot of issues through vitamin/mineral deficiencies or processing issues and then refer me out to specialists as needed from there. She was having them check a few other things as well to rule them out and mentioned genetic testing but I’m not sure if they are doing that or not.

I’ll be starting PT for recovery from shoulder surgery in a few weeks so I’ll definitely inquire with them if they have any experience with EDS or know someone who does. Until a heap load of seemingly random injuries in the last few years I was very athletic and this has been/will continue to be a huge adjustment for me.

Regarding the geneticist- what kinds of information can they usually tell you? From what I read on a few sites they really only can address the chances of your children inheriting it? You mentioned the progression though- would that be addressing if your prone to develop other diseases later on?

Thank you for your response. I feel pretty lost right now and having some other people to talk to is comforting.