Waited over a year to see the Rheumatologist

These are just my personal notes taken from the perspective of someone who knows what they're saying to themselves lol so it's not very detailed. It was more so I could use the notes to write a more detailed one that never got written lol.

The burning started at the bottom and spread upwards signaling that it was likely stemming from spine/spinal cord. They did suspect TM at first and started the prednisone for that reason. I actually did have alot of inflammation for a while and wasn't able to wear rings and etc. Prednisone helped that over time. Couldn't get my MRI til I was pretty much done my steroid round (2m later). They kept doing heart exams and stuff.. guess because I wasn't dying emerge didn't see a reason to order one asap.

/r/lupus Thread Parent