Well I'm still waiting for some answers and I'm rapidly declining in my overall health. They finally got my info sent to KU Med, but they didn't have anything stating Urgent in my referral. So my appointment was set for August 10th!!! I'm barely holding on now! I can't wait 5 months! My headaches have now developed a constant sharp stabbing pain in my left temple that runs to the top of my head. It hIurts so bad I have had to miss work because I throw up and can't even think straight. The Toradol shots don't touch it now. All my symptoms are rapidly getting worse and I keep telling my Dr. over and over. But not much is being done. I got an X ray so I can get an MRI of my spine..I'll get my Thyroid levels tomorrow. I'm just at a total loss. How do I get them to understand how serious this is? That I need help now! I don't have an oncologist...won't see an endocrinologist until August..they refuse to put me in pain management. I'm so frustrated and am not getting any answers. I desperately wish I could afford to go to The Mayo Clinic. Everything I've been going through falls in the abnormal/rare category. They won't even give me a PET scan to make sure the cancer didn't spread. You would think since they know I have abnormal lymphnodes that still haven't been checked, severe bone pain with spine pain increasing, a spot in my lungs that's gone unchecked...why on earth am I being pushed aside!? Should I demand an oncologist before I see an endocrinologist? Or would they make me wait until I had an endocrinologist? I have a good neurologist who seemed surprised I didn't have an oncologist. He's trying to help my headaches with Beta blockers but those aren't helping. He said he can't really try to figure out my bone pain until an endocrinologist gets my Thyroid levels in check. My GP won't touch my thyroid meds even though I instantly went extremely hyper after a compete thyroidectomy. My levels were normal before. I can't even find any research on Google about going hyper after thyroidectomy. It all says hypo..like it's fact..you will go hypo..all I can find is hypo unless you had graves or something first and that was the reason for the thyroidectomy. Why are all my levels and symptoms so abnormal? After the full thyroidectomy, that's when the debilitating headaches started. Along with all the other hyperthyroidism symptoms. I'm on beta blockers but still have rapid heartbeat and a higher blood pressure. I sweat constantly and am shakey. I have zero energy and fight sleep even though I take 60mgs of adderall a day. I still have all my old symptoms, but now I have even more piled up on top of those. I had normocalcemic hyperparathyroidism..ended up having 2 tumors. At Norman Parathyroid Center in Tampa they took care of those and found a nodule that ended up being cancerous. I was told it is Papillary. I was rushed in a week later for thyroidectomy here in Kansas. Nothing but an ultrasound on my lymphnodes and the surgeon saying they seem okay...no biopsy done on the ones that were abnormal on the scan. Then went instantly hyperthyroid after. Previously all my levels were normal. I still haven't had any radiation treatment. I have Ostropenia of spine and hips..probably from parathyoid tumors. But that doesn't explain the bone pain I've had. Now my spine pain is getting intolerable. My headaches are intolerable. I've lost over 20lbs in a couple months because I'm too nauseous to eat most the time. I have cognitive decline..absolutely horrible short term memory loss..can't think of simple words..have trouble saying what is in my head...sometimes I forget how to type...btw I'm sure this has so many grammar errors but I can't think straight right now. I've always been super sharp. Muscle spasms and cramps...I have sleep paralysis every time I sleep without taking my meds for it..that's been going on since high school. I have been diagnosed with narcolepsy..actually idiopathic hypersomnia..no matter how much I sleep my body doesn't rejuvenate..dizzy..confusion...stomach issues..the list goes on and on. . I still can't swallow food without having a drink..my surgery was Dec 9th. I can't do anything at all now but sit or lay in pain. I have 3 kids that fully depend on me and I can't do anything for them. I hate this, they're awesome kids..especially considering what they've already been through. Their dad walked out of their lives 8 yrs ago...They don't get all the cool things or fun vacations their friends do because they have a single mom that makes under 30,000 a year. My oldest has 2 autoimmune disease and is losing all his hair..they've had to overcome so many struggles but they've always had me as their rock and could see me triumph through the really hard times...now I'm a pile of waste that can't cook for them..can't even take them to a park. This is ruining my whole life but I can't seem to get anyone to realize this needs urgent attention...I don't think my adrenal glands have even been checked. I apologize for this being so long. I know I rambled on quite a bit there. My thinking isn't right. I can't compress..there's another word I'm trying to think of..on tip of tounge but can't find it..carpenmentalize is all I'm getting and I know that's not right, but this is an example of me not being able to think of words I know...back to can't compress what im trying to say like I use to. But I don't know what to do and I fear I'm going to end up jobless and bedridden or worse before I get the help I need. I guess I'm asking what should I do at this point? Go with oncologist? It's clear I'm not getting an endocrinologist anytime soon. The people who do referrals for my dr are idiots and leave out important info..send to wrong places..don't stress it's urgent. .they left out my records showing I have cancer and headaches to one Dr...my neurologist. ..he was like..so why are you here? I had to tell him everything.

Please know I am not exaggerating at all on any of my symptoms or about my pain...I just need help. My Dr doesn't know what to do and I'm really suffering...I have a very high pain tolerance..this has been going on well over a year now..I've fought through it..continued full-time job..continued being a mother..I've hit my limit now..it's too much now..it's intolerable.

Thank you for your time and again I'm really sorry if this is hard to follow and that it's so long.