One of those doctors was an endo specialist at a very respected hospital in Boston. She did a laparoscopy & found Stage 1 endo, then backtracked because biopsies were inconclusive and told me that not only do I not have endo, she thinks the problem isn't gyn related and to go back to my primary care to get a referral to a GI and 'there may also be a psychological component'. (I had major complications after the surgery, so that may be a factor.)

I went to another doctor at a hospital closer to me who prescribed me Lupron without discussing any of the side effects, and at the same appointment told me this wasn't a gyn issue and referred me to a GI. I went to the GI who, needless to say, was surprised to see a patient for pelvic pain & vaginal bleeding, and she referred me back to gynecology.

And now I'm on the hunt for yet another OBGYN, praying that this time I'll get some actual answers. However, there are very few specialists and I've already seen one of the top ones in my area and I'm just really discouraged.

I've been to /r/endo. Honestly, I have to say my symptoms don't line up with endo, which makes it hard to relate. The pain only occurs during bleeding. Bleeding can last for months. The pain is convulsive, like contractions. When the pain is gone there's a heavy feeling, which can last for days or weeks. I can see why endo is being ruled out by doctors (well maybe not since the surgery when Stage 1 was discovered) but I'm really unclear as to why other things like adenomyosis aren't being considered. And it's really hard to discuss these things with doctors who keep blowing me off and clearly just want a tricky case out of their department.