I'm really sorry to hear about what you're going through.
I have just started dating someone with the same condition as what you're experiencing.
I started realising something was different a few dates in and I started thinking she was holding off until marriage. When I asked her, she explained to me what's happening and it was sad to hear it caused a great deal of distress.
But she has so many great qualities, a fun loving, caring and intelligent lady that I hope to help her throughout. She's seeing a physical therapist and we are being intimate in other ways.
There are guys out there who will help you through this and be understanding. I'd suggest once you build a level of trust to have a conversation as to how guys can make you feel safe and enjoy the process.
Wish you all the best.